California Chapter Adult Congenital Heart Program

The Adult Congenital Heart Program (ACHD) want to help patients and referring MD's with contact information for ACHD programs.

The ACHD Clinic Directory offers comparative information on all self-identified ACHD clinics in the United States and Canada that currently participate in the annual ACHA/ISACHD ACHD Clinic Survey Project.


Societies Release Updated Guideline for Treating Adult Congenital Heart Disease Patients:
Document offers guidance for treatment in relatively new, growing population


[August 16, 2018]
The American College of Cardiology and the American Heart Association today released an updated guideline for the management of adult congenital heart disease (ACHD) patients.

CHD encompasses a range of structural cardiac abnormalities present before birth and attributable to abnormal fetal cardiac development. Congenital heart defects are the most common type of birth defect. The prevalence of ACHD is growing due to the success of treating these patients during their childhood. Survival to age 18 years is now expected in 90 percent of children diagnosed with severe CHD.

"Patients with ACHD are a heterogeneous population," said Karen K. Stout, MD, professor of medicine and pediatrics in cardiology at the University of Washington and chair of the writing committee for the guideline. "Although the prevalence of ACHD is increasing, the population of patients with a given congenital abnormality or specific repair may be relatively small, which can make accruing evidence to guide treatment challenging."

This full revision of the original guideline, published in 2008, incorporates new data and growing ACHD expertise. Despite the difficulty in studying ACHD populations, there is a growing body of high-quality data in these patients to guide the care of this relatively new population. These data were used to develop the recommendations.

The updated guideline presents a new classification system for ACHD patients that retains the traditional classification based on the structural complexity of the disease while taking into account the patient’s functional status and other factors, including the presence of cardiovascular and non-cardiovascular problems. The system is intended to capture the complexity of ACHD in terms of both anatomy and physiology, rather than anatomy alone. This classification system provides the basis for making lesion-specific recommendations for interval clinical follow-up and testing modalities such as electrocardiograms, transthoracic echocardiography, cardiovascular magnetic resonance and exercise testing.

"As new data become available, we expect changes to the relative weights attributed to the existing components of the classification system and perhaps new components, resulting in a system that ever more precisely tracks the overall severity of the patient’s disease and need for more or less intensive follow-up and management,” Stout said.

Patients with significant ACHD who are cared for in ACHD centers have better outcomes than those cared for in centers without ACHD expertise, and this need for specialized care is noted throughout the guideline. These recommendations are intended to provide guidance to a wide variety of providers caring for patients with ACHD, including general, pediatric and ACHD cardiologists, as well as surgeons, primary care providers and other health care providers.

The 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease will publish online today in the Journal of the American College of Cardiology and Circulation.

New Metrics For Adult Congenital & Pediatric Cardiology Quality Network


[June 1, 2018]
Three new metrics for ACC’s Adult Congenital & Pediatric Cardiology Quality Network were recently developed that measure image quality, study comprehensiveness and diagnostic accuracy of echocardiograms. Facilities participating in the Quality Network have the opportunity to collect data on quality metrics across a wide range of clinical areas relevant to the management of adult congenital heart disease and pediatric patients. Participating physicians can take part in quality improvement activities and earn Maintenance of Certification Part IV credit, and hospitals participating in the Quality Network can earn points toward their U.S. News & World Report scores.
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Purpose of our California Chapter

The purpose of the Chapter shall be to contribute to the prevention of cardiovascular diseases, to ensure optimal quality care for the individuals with such diseases and to foster the highest professional ethical standards. In carrying out these purposes the Chapter shall function in consultation with the leadership of the College and as an advisor to local and state governmental and professional organizations concerning issues related to cardiovascular disease.

The Chapter shall, in the interests of patients, physicians, and the public in general, maintain a high level of social consciousness and involvement with socioeconomic issues which may influence access to high quality cardiovascular health care for all individuals.

The Chapter has been formed as a 501(c)(6) not-for-profit corporation underthe federal and California state tax codes. The Chapter maintains an Executive Office with a full time Executive Director and support staff. The Chapter also maintains a full time lobbyist and staff in Sacramento.

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If you are not receiving ACC benefits and services, but are a fellow in training in an approved program, please fax a letter from your training director indicating you are currently participating in a program, include a current address with e-mail address to: Damion Wise at (202) 375-6842.

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